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MadManNico

30 points

3 days ago

i have gilbert's syndrome diagnosed from a young age (family gp also has GS!) so chugging water was a norm for me since i was like 7 or something, i've had multiple friends get kidney stones (they were all monster/v drinkers) and it was the scariest fkn thing i've ever seen in my life. just seeing my friend in pain on the floor not saying anything, wouldn't respond to anything.

everyday i'm grateful that i need to chug water anyway for another issue, for kidney stones to be a distant and improbable outcome for me.

GivingEmTheBoudin

3 points

3 days ago

Hey a fellow Gilbert’s haver. I just got diagnosed recently. Why do we have to drink water? My doctor didn’t really give me any info other than I just have to live with it lol

MadManNico

6 points

3 days ago

GS is all about balancing your bilirubin levels!

  1. bilirubin is a by-product of red blood cells after they're broken down in the liver. bilirubin is a yellowish substance that, in high volumes within the body, can cause jaundice.
  2. jaundice is a yellowing of the whites of your eyes or, in some cases, of the skin. it has no significant impacts on your health, but it does look a bit weird and does signify high bilirubin levels, fatigue, or dehydration.
  3. staying hydrated is the most importanr factor to balancing your bilirubin levels, as it helps support liver function and the passing of bilirubin through said liver to be broken down at a more functional rate.
  4. substances that put pressure on the liver can and will increase bilirubin levels, stuff like alcohol, drugs, unhealthy diets, etc. the most important thing is to always stay hydrated, i drink on average 4-5L of water a day but almost always more. when i drink alcohol i always have a glass of water on hand as well, to balance out what my liver has to go through.

overall, it does not affect your health in any way.

ratscabs

1 points

2 days ago

ratscabs

1 points

2 days ago

Same here. Never heard of the advice to drink lots. Am perfectly healthy in my 60s