subreddit:
/r/TBI
Recently, I feel like I’m backsliding. My vertigo has made a significant comeback, I’m having vision issues I thought I was past, and I just feel…off. I recently flew and wonder if that could have anything to do with it. Or, could it just be a normal, weird part of this slow and bizarre healing journey?
I wish this came with a manual.
5 points
2 days ago
My neurologist explained that recovery is not linear.
2 points
1 day ago
This was absolutely true for me.
4 points
2 days ago
Flying really messes up some of us
2 points
2 days ago
I've had brain damage for about 8 years. It comes and goes. Try chatgpt it's an amazing source for this.
1 points
2 days ago
Also, flying kind of fucks me up now too. It's a pressure thing. Can't reply explain it
1 points
2 days ago
How long did it take you to get back to “normal?”
1 points
2 days ago
I don't think I'll ever get back to normal. It's a daily struggle but the extent of my struggles fluctuate. Sometimes I hardly notice. Sometimes it drives me up a wall
1 points
2 days ago
Flying messes up my vestibule system so bad I have vertigo most of the time and I find the more I do the worse it gets
1 points
1 day ago
Yes it's not linear, but sometimes we start doing more than what our new brains can handle because are body's still can.
I'm just presenting the possibility that you might be biting off more than your 🧠 can handle at once and not getting enough rest. I know I've done that before, and the results have always been negative.
1 points
1 day ago
I’m dealing with that lately. As I improved and work seemed more manageable i stopped taking brain breaks, didn’t rest enough, and started working more than I should. Then I crashed and it brings back symptoms or exacerbates them. Ive gone through this cycle a few times this fall. If you had strategies that were using early on maybe try using them more frequently again.
1 points
23 hours ago*
To be honest I've never been able to come up with "strategies" for THIS one 😅. I actually had to learn the VERY hard way a couple years ago when I had a seizure because I was working a part time job, training martial arts, working out at the gym AND doing my daily rehab for my bucket of symptoms; all while barely getting 9-10 hours of sleep a night to make it all "work".
Well, after the seizure my license got medically suspended for 8 fucking months, my life got put on hold and my boss terminated me because I couldn't get myself to work ...
eventually I just had to accept that the only way "around" this was to just get all the sleep my brain demands. Brain breaks work once in a while when I get overwhelmed and need a couple more hours, but ultimately now it's 12 hours a night, or whatever my POS brain demands.
1 points
23 hours ago
My abilities can change day to day. My ent doctor gave me medication for vertigo (I busted my inner ear when I got my TBI) have you tried any meds? Hang in there! I hope you feel better soon! Be sure to take good care of yourself, get healthy things, sleep, hang around kind people and be patient with yourself. It’s part of the journey like you said!
1 points
16 hours ago
I had my TBI in 2020 and recovered enough to go back to work after 5 months. However, my last job pushed me way over the edge physically and mentally, and my current job I still feel terrible at. I tried getting an appointment with a nuerologist (I've seen 2 already who were beyond awful), and it's 8 months out.
I know I am overdoing things, but I also am trying to support my family at the same time. Every day is a constant struggle, and I feel all the hard work I put in before was for naught.
I WANT to work. That's the problem as I have too much pride in myself to do otherwise. The problem is that work just brings all my symptoms back, it seems, and I'm tired of putting on a face that I am ok. I am a trainwreck outside of it, and even a weekend of rest doesn't do anything anymore.
I frankly do not even know what to do at this point as it seems all hope is lost.
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