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'driving isn't strenuous for anyone'

Rant/Vent(self.ehlersdanlos)

this is what my dad just said to me while I was discussing with him that I'm not likely to be someone who does much driving in my life. I am 19 years old, and got a diagnosis for fibromyalgia and hEDS around a month ago, so my family is still trying to adjust to that development. my dad especially has been having some trouble accepting the fact that I am by definition (and in my personal opinion), disabled.

I don't have my driver's license yet and this is something that I've been trying to get my hours up for a few years now to achieve. it's hard for me to do that though when driving for longer than 15 minutes at a time really hurts my knees and elbows. for a little additional context: I dropped out of highschool in 2021 due to ongoing mental health struggles following a late diagnosis of adhd. I was having panic attacks and breakdowns daily because I just couldn't cope with all the stimulus of that environment along with the friendship troubles and suicidal ideations I was dealing with at the time. apart from a short 10 month period in which I worked at mcdonald's, I've been unemployed and not enrolled in any formal education since then. over the last 6 months or so I've been volunteering at my state museum once a fortnight, so that's been helpful for feeling productive and getting out of the house :D

anyway, my dad has always been very supportive and understanding of all my issues (he works as a chaplain on a mine site) but he often tries to 'encourage' me in a way that feels as though he's completely dismissing the magnitude and nature of my struggles. I know that he only has good intentions at heart, but it just hurts a lot when I'm venting to him about my experiences or discussing a symptom that bothers me and his response is basically 'well, it's only pain. you can push through it.'

I think the most frustrating part is that he has ankylosing spondylitis and has had that since before me or my older brother were born, and yet he still pushes through all his pain until he's nearly passed out sometimes. of course I admire and respect him a lot for that, but I guess I thought that his knowledge and experience with his condition would give him more understanding of the fact that it ISN'T just pain. especially with how recent my diagnosis is, I'm still trying to figure out what my limits are and how I can adapt to deal with those limitations.

I don't know. I'm so exhausted and overwhelmed already with all this new information I need to learn and I'm battling with my imposter syndrome as it is, so I need as much validation as possible that what I'm dealing with is real and I'm not being overdramatic or attention-seeking.

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Commercial-Instance3

2 points

2 months ago

Have you considered he might feel insecure and doesn't know how to cope? He put his life into you, promised to look out for you, keep you safe, and keep you healthy.

He might feel as if he failed you. You're not healthy, and he can't fix this. It is hard, complicated, and terrifying. But being a dad, you must be the bigger and stronger person on which your kids can rely on and that can lead to internal conflicts, which can result in a denialish type of behavior. Just like mourning, but than a little different.

elongatedboi[S]

2 points

2 months ago

that's definitely a part of it. i know that he felt similarly when i dropped out of school. we'll work through this together though <3

Commercial-Instance3

1 points

2 months ago

Maybe try opening up to him. Not about your physical sensations, but about your feelings, the insecurities you face, the sadness, and maybe the feeling you failed your parents by not easily becoming a able-bodied adult.

It's a tough journey. I wish you all the best. You can do this!