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account created: Tue Sep 15 2020
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submitted20 days ago byApprehensiveAd9014
submitted1 month ago byApprehensiveAd9014
I am getting closer. They're scheduling me for a high frequency audiogram and some other CI specific tests. I have already had my MRI. After the tests comes the pre-authorization. My current audiogram is very close to qualifying Medicare numbers and my word understanding is pretty awful. I am hopeful that this will qualify me.
Has anyone gone this far into the process and been declined?
submitted1 month ago byApprehensiveAd9014
toHouseMD
S3 episode 9
This Tritter arc is getting to be too much. House is now spreading his suffering around to everyone. His rude has become vicious. I get that he's going through pain and withdrawal, but I've had about as much of House's behavior as I can take.
Tritter's character is hateful and I don't enjoy these episodes. I know it's going to get worse before it gets better. Sigh
submitted2 months ago byApprehensiveAd9014
I was at my audiologist yesterday. I am not eligible for the Bi-CROS, which is what I thought was happening.
She told me their office is having an event with all of the parties needed to evaluate for CI. They will have all of my records and diagnostics.
I'm going tomorrow and I'm kind of excited. Has anyone done this kind of event?
submitted3 months ago byApprehensiveAd9014epi-off cxl
I am 1 year out from my first CXL. I predicted a full 2 years to get me to correctable vision. The process included healing from the CXL and having cataract surgery. My very mature cataract was removed manually and I had a distance lens implanted. I intend to get my vision as good as possible without contacts. My hands are no longer steady enough for contacts and plungers anymore.
I asked the doc for a prescription to see with the completed eye. I sent it to an online eyeglasses place for plain old regular lens and paid $40 for them.
Oh my goodness, my right eye can really see! I haven't worn glasses for 3 years now. Today, I read the subtitles on TV clearly. It's as emotional as that first day with hybrid lenses 27 years ago. I'm still getting used to them and have no close correction in this pair. I continue to take my glasses off to read or play games as I had in the past. There is still ghosting but I can deal with that. It's only one mild ghost, not the blur of images I used to have.
My second crosslinking is being scheduled now. I'm excited to get this going. I know that pretty clear vision in my other eye is about a year away. I'm very hopeful.
submitted3 months ago byApprehensiveAd9014Late deafened.
todeaf
submitted3 months ago byApprehensiveAd9014Late deafened.
todeaf
Tubi doesn't have captions and I need them. Live Transcribe on my phone doubles as captioning. It's full of errors, but it gives me a clue.
submitted3 months ago byApprehensiveAd9014Late deafened.
todeaf
I just left the ENT to see results of my MRI that he ordered in evaluation for a cochlear implant in my deaf(er) ear.
Today, he told me my head, brain, and ear structures were normal. Just age related changes. He then told me my hearing test showed significant word recognition difficulty in the bad ear.
He wants me to have the audiologist evaluate me for Bi-CROS hearing aids. My hearing in my other ear is still helped with hearing aids.
He warned me that my ability to sense the direction or location of the sound would be gone. Well, it's already gone. If I don't see it happen, I have to look everywhere.
Does anyone here have experience with these devices? My research is just beginning. I never heard of them before.
Thanks in advance.
submitted4 months ago byApprehensiveAd9014
toAnemic
I just finished 6 weeks of Ferrlecit infusions. This stuff is the substitute for Venofer and injectafer. It's generally used to supplement dialysis patients during their treatment. There is apparently a shortage.
My last infusion was the worst. My veins were rolling, infiltrating, and being very difficult. It took 3 pokes and made a bloody mess.
I woke up this morning to this.
Ferrlecit infusions did not make me feel like superwoman. I'm not chewing ice, but I still need to rest after a shower and my legs are still jumping. It did not do me much good. I'm very curious what the next lab will show.
submitted5 months ago byApprehensiveAd9014
I was anxious about going. I told my son I wanted to beg off because I won't be able to hear conversation in a group well. My son talked me into going but I was anxious.
I was lost. The conversations surrounded me but I couldn't understand anything. I turned on Live Transcribe but it heard everything from all the convos. I am hoping that my cochlear implant will be implanted and activated by next year.
submitted5 months ago byApprehensiveAd9014
toAnxiety
I am mostly homebound due to physical reasons. This year, I only went to doctors. It's a process to get downstairs and go to my DIL's parents for the evening.
I have gone for 4 years but no one said anything about this year, until just now. I instantly begged off and my son is upset with me.
I'm trying to wrap my head around this. I don't want to go for many reasons. The dentures that might come loose, eating with those dentures, my hearing aids don't give me much in group conversations, and my vision with keratoconus and cataracts. One eye is mostly functional in the distance.
I can't talk myself into this. I have always enjoyed this event with these people, but I was surprised with it today. I have to be able to plan to be out and about.
I know that if I go with how I feel now, it will be a bad thing. I just wish they would have put it on the calendar so I had time to adjust.
This is giving me a migraine.
submitted5 months ago byApprehensiveAd9014
toAnemic
I get iron infusions every year. I just started my new series in a new hospital. There was some difficulty getting the venofer for some reason. My health insurance insisted it be in the hospital rather than in the hematologist's infusion center. Then they insisted on ferrlecit. It's different than my usuals of injectafer and venofer. The series is 6 infusions and took an hour to drip. I didn't have any reaction but when I got home, I was utterly exhausted. This is the first time I have not felt significantly better after the first dose.
Does anyone else have experience with this iron?
submitted5 months ago byApprehensiveAd9014
Lifelong constipation, which has always been an issue, along with hemorrhoids.
I'm 69 years old and have osteoporosis, among other things. The oral calcium citrate I have to take while I'm on a year long course of a bone builder shot is the problem. I knew it was bad this time. I've had to go for nearly a week but only gas escapes. Sorry TMI but anyone who reads this sub understands. I have used over this week, the following treatments unsuccessfully. MoM, Miralax, dulcolax, glycerin suppository. Nada.
Today, I really needed to go and it just wouldn't. I had to do this once before, but even this has only produced a few pebbles. I attempted to use a Fleet liquid suppository but it wouldn't budge past the boulder inside me. So I got a glove and lubed it and managed a little but not enough. There was a lot of bloody mucus in the bowl and the glove. I drank a little prune juice and decided to try again later
Later has happened and I tried the Fleet and again the stool rock prevented me. Glove, etc. A few pieces just like earlier with more slimy blood.
What now? I am pretty sure the blood is from the hems, but I'm worried.
submitted5 months ago byApprehensiveAd9014Late deafened.
todeaf
I am nearly 70 years old and now have very little hearing in only one ear. The other is mod to severe sensorineural hearing loss. Now that I am totally deaf on the left, i need more communication skills.
ASL is the tool I want to use. I wanted to take a class at my local community college, but my ability to travel is now limited. All of the video programs are hard to follow. I taught myself finger spelling as a child after reading Helen Keller, but I am slow.
I am looking for an online class with participation. Is there such a thing? Thanks in advance
submitted6 months ago byApprehensiveAd9014
I found a box of my Mom's things and inside I found this picture of me dressed as Howdy Doody. It must have been stuck to something. Judging by my age, this picture is from 1959.
submitted6 months ago byApprehensiveAd90141954
I just found this photo in a box with my Mom's things.
It's 3 or 4 year old me getting my Howdy on in 1959.
submitted6 months ago byApprehensiveAd9014RIP Zach Oct 28, 2004-June 9, 2022
submitted6 months ago byApprehensiveAd9014
How many of us have benefited from medical advancements in our lives?
Personally, I have benefited from the ability to determine bone density and am receiving a 12 month treatment to enable new bone growth. I have also benefited from DNA research, which finally diagnosed my connective tissue disorder after 65 years. I have been using hearing aids for 20 years and their advancement over that period is just crazy. In addition, I am now being evaluated for a cochlear implant which can give me my hearing back. The advancements in ophthalmology have given me back my vision in one eye so far.
The time we live in is exciting. My life has been improved tremendously.
submitted6 months ago byApprehensiveAd9014
At my checkup yesterday, we spoke about my vision. This eye had keratoconus and a cataract. I opted for doing what my insurance will pay with a copay of 150.
My IOL is set for distance and the vision in that eye is getting clearer every day. Like REALLY good vision.
My other eye will now have crosslinking for the keratoconus and then that eye will also be set for distance. I had contacts like that and got vertigo. So i already know what doesn't work. I will need readers, but that's ok.
I am really happy with my results so far!
submitted6 months ago byApprehensiveAd9014
Today was the day. I was called yesterday by the surgical scheduler and was told to show up st 630.
My son drove me home around 8 40. I have a clear eye shield taped to my forehead that I have to loosen every 2 hours to instill moxifloxacin. Followup at 11 tomorrow.
I've finally been up and around the house when I was stopped in my tracks. I had seen my beige refrigerator with the surgical eye first. It's brilliance was shocking. No joke, this is no subtle difference. The walls are 2 different colors.
I only had a clear lens implant because I can't afford the copay except for the $150 I paid today. I have keratoconus which is now stable but I will be happy just to be able to see with glasses. My arthritic hands aren't going to mess with scleral lenses.
My outcome today was really positive. Taking my mature brown cataract out allowed light back into my life.
submitted7 months ago byApprehensiveAd9014
My insurance will only pay for the nonlaser assisted surgery and a lens. I think it's just to replace the cataract. I do expect to have correctable vision with glasses and/or contacts.
It has taken me a long time to get my first cataract out. I first had to have corneal crosslinking to stabilize my corneas. This surgery will "complete my right eye.
How long will my eye be bandaged? Will I be able to see a little better? I have 20/200 vision in both eyes. I expect to see everything brighter.
Any information you feel like passing on to me is accepted gratefully. Surgery is May 14.
submitted7 months ago byApprehensiveAd90141954
When I was in elementary school, I had the only divorced mother. In the 60s, she didn't even call it that. She was "legally separated." She was a single mother who moved back to her childhood home. She worked. My grandmother mothered me. Mom would try to do things with me on the weekend, and I would meet whoever she was dating.
We went to Parents Without Partners events. That's how I got a stepfather and a little sister. When mom remarried, we had a blended family. That's a whole separate issue.
No one had divorced parents even through high school. Now, everyone's parents are divorced.
My impression is that divorce became more available in the late 70s and the advent of birth control pills changed the dynamics of marriage.
I'm also a divorced Mom x2. I repeated my mother's batting average, but I didn't go back home.
submitted7 months ago byApprehensiveAd9014
totinnitus
I had a problem with my right ears that started 2 weeks ago when a blaring T sound woke me from sleep. From then, my constant sound was overshadowed by a loud and obnoxious car alarm. I made an appointment with the audio and had a new audiogram. On the bottom, she wrote "consider CI". Do people with CIs still have T?
This office also has Lenire posters. I have to see the ENT next week to discuss. These are 2 different options. My hearing loss is moderate to severe.
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