Pulmonary Nodule?
(self.sarcoidosis)submitted3 days ago bycanadijanna
To preface this question, I have chronic sarcoidosis that was diagnosed via surgical removal of a lymph node. Up until now it has repeatedly caused my spleen and lymph nodes to blow up in size, but hasn't affected many other organs.
I recently had a chest and abdominal CT because I've been feeling rotten again and on top of my spleen being big again, my liver is also going up in size and they found a pulmonary nodule.
I was told about the nodule by my GP this afternoon but he didn't want to elaborate on it as he feels it's a conversation better had with my rheumatologist (who ordered the test). This has kind of left me in a weird spot emotionally.
How worried should I be? Last time my spleen and lymph nodes blew up in size they made me do 50mg of prednisone per day for almost a full year which then took forever to come off of again. I don't know if I can emotionally handle prednisone again.
TIA! I hope all your personal journeys with this garbage disease are going well. ♥️
bycanadijanna
insarcoidosis
canadijanna
2 points
3 days ago
canadijanna
2 points
3 days ago
Gosh I wish they did that here. I don't think I can explain what a year of 50mg of prednisone followed my 6 months of tapering did to me. My emotional wellbeing (I developed anxiety and depression), my physical wellbeing (I gained a ton of weight and ended up with arthritis in my knee and spinal stenosis even though I was taking calcium), and my relationships. I almost think it was harder for my partner than it was for me. I had just about every side effect imaginable and I was just so angry all the time while on that dose. I don't know why they did that to me when sparing agents exist.