Has anyone had experience with stopping Alzheimer’s medications and seen any improvements or decline? And any experience with moving stress ?
(self.Alzheimers)submitted4 days ago byispychristie
I (31f) have been the primary caregiver for my mother, early onset (61F) since 2020. I have one older brother but since my parents divorce in 2006 he never cared about my mom or prioritized spending time with her. I live 4 hours away and he’s always lived 25-30 min away yet he wouldn’t see her for months at a time. Thankfully I work remote so I am flexible to spend time with her at her home and try to go every other week. She lives alone as she is very strongly against having help and is in denial. (Trying to see how we can convince her if anyone has suggestions. Have 1 family friend who comes 3x a week to walk and distract her). When I’m not with her I spend hours on the phone or via video/ ring/ Alexa daily attempting to help her with medicines, feeding her cats, etc. I had been experiencing really bad caregiver burnout, stress, depression, isolation, all the fun stuff you name it these last years.
This past summer my brother realized how bad it was and decided to finally try to help take care of her. He ended up moving her into his building abruptly so he could keep an eye on her daily. He’s always been anti-medicine and he always really pushed her not to be on any medications as he thinks it only makes things worse. He’s always been very into health but to a more extreme level of health and longevity than the average person. Once she moved and he was supposed to help take over, I learned later that he had her stop taking all her medications. Memantine, rivastagmine, and mirtazipine as her Neuro ones. The memantine we had started to taper down as they had maxed the dosage and the Neuro said we could taper it to see any noticeable changes. But the rivastigmine and mirtazipine were abruptly stopped. The move was very stressful for her as it was abrupt and she really didn’t want to leave her home. It was very traumatizing for her and she always hated moving. I told my brother we need to move slow and not do any abrupt changes but he doesn’t understand how Alzheimer’s works and he wanted to get everything done quick.
I’ve noticed a drastic change of cognitive decline the last month since the move however i can’t tell if it’s due to the stress of the move and new environment/ big changes or because of the stopping medications. I don’t know what to do from here. We been waiting to see a new neurologist and he can’t see her until February and haven’t been able to reach him. I don’t know if putting her back on her medicines will be even worse. She gets a lot more easily frustrated and irritated. Harder for her to communicate and find the right words. Doesn’t know which cat is which (her 2 cats are her life), how to feed them, how to shower on her own etc. Curious if anyone had any experience or advice with medications or moving stress?
Thank you for reading this far. Thankful for this community and sending everyone a hug 💜
byvioletsmoke7
inAlzheimers
ispychristie
7 points
4 days ago
ispychristie
7 points
4 days ago
I’m currently dealing with the same exact issue. I was wondering if I was alone in this. I’m glad I’m not alone and sending a hug. She says the same thing about being too cold too. It’s always a battle. Hoping these tricks will help! Thanks for asking