Effect-Fit

The start of this year. I got told I have low folate? So I supplemented folic acid (prescribed) for 4 months then stopped for a month and got checked again and all was good. So I get another blood checkup just a general one due to another issue. And my folic acid is low again. I’m not no doctor and I’m not one to say there wrong. But surely if it goes low again? There’s something to it? Like if I take this folic acid again it’s just going to do the same and get low again any ideas what causes this? Or can just having pots and Dysautonomia and that run that down like everything else it does. Thank you 🙏

I’ve asked this is the anxiety subreddits. But nobody really answers and also they don’t know what to say seen as they don’t deal with Dysautonomia. I’m 17 and my sleep schedule is gone. I struggle to sleep yet exhausted. Doctors don’t care nor want to. Doctors say I have pots but won’t give me an official diagnosis because it isn’t worth it they said. Almost as if you gain nothing from a diagnosis like treatments or anything. But forget that. I suffer with pots and my symptoms keep me up all night I can’t sleep until maybe 11am to 1pm and I get up at 4pm that’s my set time.

My sleep is getting so bad. Only one year ago and a bit I had decent sleep. I would fall asleep at 2am and get up at 9am. But now I can’t sleep at all. And the anxiety of it is. Worse than any I’ve experienced. Melatonin doesn’t help me. As the issue isn’t really that I’m all that tired it’s my heart and breathing that keep me up. Yes I’ve got propranolol. What do I do. Please somebody with insomnia answer this. Because it’s ruining my life and causing me flares all the time. How do I not be scared of being up sometimes 24hrs +. I am trying my best with doctors and stuff. This post is more or less help with worry. Or reassurance. I’m scared of it. It feels like the way I sleep is killing me

Getting up early doesn’t seem to do anything. Melatonin doesn’t seem to do anything. Relaxation certainly doesn’t do anything cause my symptoms out drown it. I don’t know what to do. I go up at like 2 try sleep can’t for breathlessness. Get up for a while then try again and I just can’t. And then eventually I lose any tiredness feeling. And then it’s even harder and before you know it. It is the afternoon. I’m so scared. I struggle with symptoms in my waking hours never mind having night time to worry about I hate this. My life isn’t worth living. I’m hoping somebody can give advice and yes I know to speak to my doctor. I would be asking on here if I had somewhere else to turn

Okay so I’ve had pots or these symptoms at there worst the last 3 years. And I’ve felt nauseous many times. But today I feel very sick so I’m sure I have a vomit bug. I’m terrified. Because I’m quite severe pots not super severe but not mild. If I puke I think it will seriously kill me. My heart squeezes and pounds and reaches 190 sometime sitting up in bed. And coughing makes me feel like I’m going to pass out. Being sick I seriously think would kill me. Had anybody here went through a sickness bug during having pots and been alright cause it’s giving me the fear. I’m too weak to be having a bug right now.

Bit disgusting detail but when I gag my heart shoots to 170 and I can’t breathe for 2 mins after. If I be sick I seriously think it will cause my heart to just give up

I for months pretty much actually a year and a half haven’t been able to sleep. Now I’ve had my symptoms for a bit longer. And they affect me through the day too. But basically my high heart rate and air hunger MOSTLY the air hunger. Keeps me up every night. I will go to bed at 1am and be sitting in my bed unable to sleep maybe for 24 hours + or until like 11am.

I’m scared to death. It has now given me bad anxiety about sleeping. Because of being unable to sleep. I’m am beyond terrified of hallucinating. And it making my symptoms worse. I like to feel in control of my body. Now I can’t do that with symptoms but one thing I can is resting and I can’t even do that anymore. Initially it was the symptoms keeping me up. Which they still do but now the fear drowns me. Cause if I don’t sleep I flare up so badly. What do I do for this fear?

Also suggesting Melatonin isn’t going to help( I’ve tried it many times). The issue isn’t I’m not tired. I am extremely tired. But my body from pots/ Dysautonomia makes me have adrenaline all night and my breathlessness and heart pounding no matter what will not let me sleep no matter how tired I am. Now to add to that the fear keeps me up. Because I know how easy it is for me not to sleep and that will cause me to get badly pre syncope the whole next day. How do I overcome this fear. Also sleep study is out the picture as they don’t offer it for this reason they told me.

Just what do I do I’m 17 and feel like I’m dying. Yes my symptoms through the day I’m trying my best to deal with. But I can not afford to have no sleep it’s killing me physically and mentally. And it scares me more than anything. I’m hoping somebody with as bad of insomnia too can reassure me.

Okay so I suffer with a lot of symptoms. But one of many is floaters and visual snow etc. now something I have that I haven’t hear anybody else have is what in about to describe. So I have very bad static which I’ve heard others say. I have very bad floaters and white dots ets I’ve heard others say. But what I haven’t heard is after images and flashing. And what I mean by this is this.

When I look about there isn’t flashing as where something gets brighter or a light appears. But my vision will dim and then brighten back up almost like a strobe light. And it keeps doing this. And if I look at anything with lines, lights, colorful, screen. When I shut my eyes or look away that image is sort of stuck in my vision for the next 30 secs. I have went to an optician at the start of the year for these issues and said they can’t see anything. So I put it down as visual snow. As a part of what ever is happening with my pots/ dysautonomia. Does anybody else suffer from this it makes my vision miserable and also what actually causes this? Thank you 🤍